Tag Archives: supplements

alternative remedies: a few thoughts

5 Jun

PCOS patients–or perhaps I could more generally say “patients with chronic conditions”–often get frustrated with the difficulties of treating the syndrome. Treatment protocols for PCOS can be very simple (more exercise, for example) or very complicated (an array of medications, lifestyle modifications, even invasive fertility treatments or weight loss surgeries). Often, “alternative” remedies start to look pretty good, especially if you struggle with bad side effects from your medications.

There are a few things I’d like to say here about some of the most commonly suggested alternative treatments for PCOS. I have not tried all of these things, by the way, so I am basing my recommendations and thoughts on scientific research, not personal experience.

Herbs
From what I have read, some herbs may be helpful for some of the symptoms of PCOS, but none have shown consistent results in clinical trials. That doesn’t mean they’re definitely not useful (especially because there are not a ton of researchers rushing to do large blind trials of products without a lot of profit potential), but it does mean that there are no solid recommendations for what to take, or how much to take. The other concern with herbs of any kind is that they are not regulated products in the way that pharmaceuticals are. You don’t know for sure what’s in your capsules, whether it’s a consistent strength, etc. For this reason, I recommend a lot of care if you use herbal supplements. And I recommend that you research the supplement and the company to make sure you’re buying from a company you trust.

Specifically, many women use vitex, and anecdotally, a lot of them seem to have some results for cycle regulation. Keep in mind, however, that these self-reported results are usually also the result of lifestyle changes, so it may or may not reflect an effect from the herbs.

The bottom line on this one is: use caution. Even if an herb has genuine use for a particular condition, it’s hard to know you’re getting what you pay for, and difficult to know what dose to take. Final caveat: TELL YOUR DOCTOR if you are using any herbal supplement. If there’s an interaction between the herbs and your drugs, your doctor will need to warn you about that, and in any case that is information your doctor needs in order to treat you most effectively.

Yoga

Yoga may be very helpful for PCOS patients. It’s good exercise, although probably not enough of an exercise regimen on its own; it can reduce stress in the same way that meditation might. As long as you are using good form and not pushing yourself too far, it is very unlikely that you’ll see any adverse effects from yoga (except maybe on your budget, if you’re doing classes). For that reason, it’s a great choice for an activity that might complement your other exercise. The worst that can happen is that you don’t find it useful. There are several different kinds of yoga, some more active than others, so you can get a pretty good workout if you choose the right variety.

Acupuncture

Acupuncture is the stimulation of certain points on the body–most of the time, when people talk about acupuncture, they’re talking about the kind that uses needles to stimulate those points. There has been clinical research about acupuncture, but most of the studies have been fairly small. The studies all seem to agree, though, that there is no clear benefit. Acupuncture also carries some risks, though not common ones: infections from contaminated needles, punctured organs. If you want to give acupuncture a try, make sure you choose a reputable, careful establishment that uses single-use, new needles.

Although a lot of people cringe at the idea of acupuncture, the needles are very, very thin and most patients report that they do not hurt.

Insulite Labs Program
Finally, I wanted to discuss the program for insulin resistance sold by Insulite Labs. It is a popular program, and a lot of ladies have had good results from it. In my opinion, however, it is a very expensive program for what you get, and it is likely that the good results are coming from the fact that the program includes healthy eating and exercise in addition to weekly support and the “nutraceuticals” that patients take. I’m not knocking those things–if it helps you eat better and exercise, more power to you!–but I am very skeptical about the supplements themselves as a treatment for PCOS.

Summary
In sum, the trouble with alternative treatments is that there just is not enough evidence. While you might try some of these things, I recommend that you not give up on traditional medicine in the meantime. Some of these approaches–especially yoga or similar types of physical practice (tai chi, etc.)–can be great adjuncts to your PCOS treatment regimen. If you do have good luck with any of the alternative treatments, let your doctor know!

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omega-3 oils: new research

8 Feb

So, studies have shown that most supplements are…well…pointless. But the research I’ve been seeing about omega-3 supplements has been very promising. Some of the recent studies on this supplement have demonstrated that it is very effective as a treatment for depression. This recent article argues that major depressive disorder is linked to a low omega-3 index (that is, having too few omega-3s in the body).

PCOS patients may also find this recent study of interest. It showed a drop in bioavailable, or “free,” testosterone in women who took an omega-3 supplement. Since testosterone–especially the “free” testosterone–causes hirsutism, acne, and hair loss, this is an important discovery for PCOS sufferers.

Omega-3 fatty acids, which are a big deal in recent nutritional and medical research, are found in fish and other marine life. (They’re also found in flaxseed, but as I understand it, it’s harder for your body to use them in the form found in flaxseed, so that is less preferred.) You can certainly increase your intake by eating more fish, but especially considering the concern about getting too much mercury, you may want to consider a supplement. (It’s also really difficult to get the higher dose that is recommended from food alone.)

Here’s how it works: you need both omega-3 and omega-6 oils. The standard American diet, however, contains FAR more omega-6 than you need, and much less omega-3. The ratio of the two in Western diets is often 10-1 in favor of omega-6; in fact, sometimes it is as high as 30-1. The optimal ratio, scientists think, is somewhere closer to 4-1. That means you need MORE omega-3, but less omega-6. In part, this disrupted ratio is due to the predominance of soybean, sunflower, corn, and canola oils in our diets–all of these oils are high in omega-6.

On an episode of the Kojo Nnamdi show on NPR, an expert recommended a fairly high dose of omega-3s per day. (The show, by the way, is worth a listen if you are interested in the effects of omega-3s on depression.) The consensus seems to be that you should get at least a gram–possible 2 or 3 grams–of omega-3 per day. Don’t be confused by the dosage of “fish oil” on the bottle; it should also list the dosage of “omega-3.” This will probably be divided into DHA and EPA.

It’s also important to get a high-quality supplement, to avoid possible mercury contamination. The bottle should say “molecularly distilled.” You don’t have to pay a fortune to get that, though. I get mine at Costco. If you try omega-3s and see a difference in your mood or PCOS symptoms, please report back! I’d love to hear your results.

more on Vitamin D

14 May

More information about Vitamin D–this time, a new study’s info about possible dangers of supplementation.

Conflicting information? Maybe. Overall, however, it seems to me that the message is, we don’t know! While some PCOS sufferers seem to have gotten good results from vitamin D supplementation, it’s definitely something to discuss with your doctor. Getting your levels tested is probably a good idea, too.

back from a hiatus!–and vitamin D

13 Apr

Due to the pressures of…well…life, this blog has been a bit neglected of late! I begin remedying that with some information for you about vitamin D.

Recent research is showing that there are a number of benefits to making sure that your vitamin D levels are sufficient. Vitamin D has been linked to increased fertility. In addition, deficiencies of D have been linked to depression, osteoporosis, heart disease, obesity, and diabetes. Severe vitamin D deficiency causes rickets–which are largely eliminated in the U.S. today.

There is some disagreement in the medical field about what the healthy level of vitamin D in the body SHOULD be. M.F. Holick, author of The Vitamin D Solution, believes that the optimal levels of vitamin D are significantly higher than current recommendations–so much higher that a large proportion, even over 50%, of the population may be low in vitamin D. [Just to clarify–I neither agree nor disagree with his argument, and I am not recommending the book. He is just one of the current researchers who are working in the field!]

In any case, many women don’t get enough. There are a lot of reasons this might be so, but chief among them is that we don’t spend a lot of time out in the sun without sunscreen. Of course, too much sun can lead to skin cancer and other skin problems, so it’s a balancing game. One way you can combat this is by supplementation; vitamin D is widely available, largely considered safe [at least in normal doses], and fairly cheap. There is also vitamin D in some foods: fortified dairy products, fatty fish, and eggs.

If you do think you might need vitamin D–more likely if you get little sunshine, have dark skin, or live farther from the equator–visit your doctor. An endocrinologist, especially, can help you decide what your dose should be. While there is little consensus about what dose is safe, research is suggesting that the US RDA–200 IU, for adults under 50–is woefully inadequate. The safe upper limit, according to current regulations, is 2,000 IU for normal adults [those who are not deficient], but research is showing that this number is also too low.

The bottom line: if you are concerned, ask your doctor. And make sure you find out what the actual level of vitamin D is; your doc may say that it’s normal when it’s still a bit low, if he or she is using a standard that is looking increasingly outdated and suspect! Finally, watch for new research–since it’s a hot topic, new studies are coming out often. You might get better information a couple of years down the road.

research! Take folate with your Met.

7 Mar

If you’re on Metformin, or considering it, check out this research–it recommends taking b-vitamins and folate with your Metformin, because Met can elevate levels of homocysteine [a risk factor for heart disease] and reduce levels of b-vitamins. This study found that taking folate can help with both.

breastfeeding: insufficient glandular tissue

5 Nov

Diagnosis

Different women are diagnosed with PCOS for different reasons. In my case, I had no problem getting pregnant (indeed, my daughter was unplanned). But when she was born, it gradually became obvious, over the first week of her life, that I was producing very little milk. We went to lactation consultants; I rented a high-octane hospital-grade breast pump; I started gulping mother’s milk teas by the gallon and taking fenugreek (an herbal supplement that made me smell like maple syrup).

My lactation consultant mentioned the possibility that I should be screened for PCOS. She told me that I had a condition called “insufficient glandular tissue”–sometimes described as “tubular breasts” or “hypoplastic breasts.”

First and foremost, let me be clear: not all women with PCOS will have breastfeeding problems. Of those women who do, not all of them will experience undersupply. (Oversupply is often a problem for PCOS moms as well.)

It’s best to be prepared with information, though, and there are some indications that can point to IGT even before your baby is born. In a mother with IGT, the breasts often:

* are asymmetrical. No woman’s breasts are identical, but a marked asymmetry can be a sign of possible IGT.

* lack normal fullness. Hypoplastic breasts may have the appearance of “empty sacks.” They may be larger near the nipple or bulbous at the tip. You might think of this as “narrow” breasts, especially where they join to the chest wall.

* are widely spaced apart.

* have large areolas.

* do not undergo expected changes in size during pregnancy and immediately postpartum, or exhibit those changes to a lesser degree than normal.

Just being small-breasted is not a sign of IGT. Most flat-chested women breastfeed without any unusual difficulty! Indeed, it may be easier to get a good latch with smaller breasts, at least for a newborn. But if your breasts exhibit the characteristics on the list, it might be worth while to talk to a lactation consultant in case you have difficulty.

When my daughter was born, I assumed that I would breastfeed exclusively, and it never crossed my mind that I might fail. I was going to be home with her for a year, working on a Ph.D., and it was a no-brainer. But over the course of her first week, she lost more and more weight. She cried. A lot. I didn’t know what was wrong, and doctor after doctor said, “Anyone can breastfeed. Just offer the breast more often.” I told them that she was eating almost constantly, but they brushed me off.

She lost weight, and then, more frightening still, she became less active and alert. She had been an amazingly alert newborn, watching everything; she became very sleepy. We went back to the pediatrician and began supplementing with formula. After her first two-ounce bottle, she slept contentedly for four hours, completely worn out by her attempts to get enough milk. I was devastated. I felt like a failure. And of course all of my disappointment and anger and self-blame was heightened by the fact that I had enough postpartum hormones washing around in my bloodstream to turn me into a totally insane person. One of the biggest problems with low milk supply, for mothers of newborns especially, is that the emotional setting of the problem is so intense.

When we went to an appointment with an LC who weighed Mary before and after a feeding,  we found that–in 20 minutes of engaged nursing–she was getting about 1/5 of an ounce. That’s right. One-fifth. I began supplementing her, using a bottle. She refused the breast very soon after that, and I began exclusively pumping for her. Until she was six months old, I pumped for her at least six times a day (nine times, for the first two months). I washed pump parts until I thought I would lose my mind. She got between 4 and 6 ounces of breast milk per day.

When my son was born, he was immediately an energetic nurser. I was prepared for problems (although part of me still harbored the fantasy that this time he would just gain with no problem at all and it would be fine). By day three, it was clear that we would have to supplement. He was committed to nursing, however, and nursed at every feeding for eight months, and then several times a day for two months after that. Even though he was supplemented, we had a satisfying breastfeeding relationship. I know that I did produce more milk for him; however, whether that was because he was actively nursing or because the first pregnancy had helped my breasts create more glandular tissue, I don’t know.

So, if you have IGT, what can you do?

There are a lot of things you can do to help boost your milk supply. None of them, unfortunately, are going to be a silver bullet if you do really have IGT. They can help, though. Here’s my list; most of these things I have tried, although the at-breast supplementer only lasted two days before I gave up on that in frustration, as it was ruining my son’s latch and I couldn’t get the hang of it. For many women with low milk supply, the at-breast supplementer is a godsend.

Nursing Practices

* Nurse as frequently as possible, any time the baby wants to. You may have to offer the breast more often than the baby seems to request it, especially if you have a sleepy baby.

* Consider co-sleeping. I know there is conflicting data about the safety of this. From what I can see, it is at least as safe as putting the baby in a crib; there is a small risk [very small] of suffocating your baby, and that’s what the media leaps all over. But as for actual numbers and statistics, co-sleeping reduces the rate of SIDS a lot more than it increases the rate of any other problem. You can read up on this and make your own call, of course [here’s what Dr. Sears has to say], but I do think that, especially if you sleep topless and skin-to-skin with your baby, it’s the best milk production booster there is. All of those hormones produced by skin-to-skin contact for hours every night are definitely going to help. Do follow all safety rules if you do this, though–I refer you again to Dr. Sears for a safety rundown.

* Wear your baby in a sling or other carrier [personally, I loved my Moby Wrap for my newborn until he was about 20 pounds]. This has the same kind of hormonal benefits as co-sleeping–and the less fabric between you, the better. If you have the leisure to hang around home topless with your [undressed] baby, do it. It will help.

Mechanical Aids

* the at-breast supplementer (for example, the Medela Supplemental Nursing System, or SNS). This is a bottle-and-tube assembly. You fill the bottle with the baby’s supplement (formula or pumped milk), attach it somewhere that you won’t have to hold it, and tape the tube to your nipple so that the baby sucks the milk through the tube during nursing. This can make it possible for your baby to get all of his or her nourishment at the breast even if you cannot produce 100% of the milk. It eliminates the problem of nipple confusion and gets you more nipple stimulation. I recommend that you get help from an LC if you use this, because it can be a challenge to coordinate, as I said.

* breast compressions. Dr. Jack Newman’s site has a great video on how to do this, as well as a great information sheet about it. This can really help you get as much milk into the baby as your breasts can make.

* pumping, using a high-quality breast pump. Usually it’s recommended that you pump after feedings. There is definite value to this, but if you have a baby who likes to nurse, you are probably better off just nursing as much as possible. Definitely, though, if your baby cannot nurse at any particular time [if he/she is in the NICU, if you have to be away during the day for work, if he/she sleeps all night], pump.

Galactagogues [that is, things that you eat or take as supplements or drugs to help boost milk production]:

* Oatmeal. Eat a lot of it. It really helps. Seriously.

* Guinness or other real stout beer. This is a judgment call, since you are nursing [obviously] and your baby could get some alcohol. But I drank half of a pint-sized can of Guinness most nights and it made a measurable difference in my output the next day. I was comfortable with it, although I did try to drink it either right as the baby was nursing or immediately afterward, to allow the maximum time for the alcohol to leave the milk. [Yes, that really happens; no need to pump and dump.]

* High-iron foods. Many mothers of newborns are anemic and that can hurt your milk supply, especially if you bled a lot during the birth.

* Fenugreek. This is a very common herbal supplement; it’s also a spice used in some foods. It smells a bit like maple syrup. If you are taking enough of this to help your milk production, you will also smell like an iHOP. I have never seen any indication that this is unsafe for mother or baby, but it can make some babies very gassy, so your mileage may vary on that.

* Blessed Thistle. Also common. A lot of the research about these herbs [which is unfortunately not very much!] indicates that the two together have a synergistic effect, improving milk supply more than either one would alone.

* Alfalfa. This, I think, is just helpful because it boosts iron; you might get the same effect from any other kind of iron supplement. It is easier on the stomach, though.

* Goat’s Rue. This is a supplement that is reputed to help women build breast tissue–which is exactly what PCOS ladies need. It has the potential to help more than other galactagogues, because those can only work on the ducts that already exist, whereas Goat’s Rue may help produce more ducts. The research on this is spotty, but it’s worth a shot. I will warn you, though–it is quite possibly the most vile substance I have ever tasted. You can get it in tincture form, which is what you want, and it is….well…let’s just say, I only choked it down because I really love my babies.

You can also consider getting Motherlove’s More Milk Plus Special Blend. This is more convenient, because it’s one bottle and you just take your dose. More Milk Plus, the more common tincture from Motherlove, is easily available in health food stores, but I have only seen the Special Blend on the shelf once or twice. You may have to order it online. It contains–in addition to fenugreek, blessed thistle, and goat’s rue–nettle leaf and fennel seed, and water and alcohol. The amount of alcohol is quite small and my pediatrician said that it would not affect my baby, but there are alcohol-free, more expensive formulations of many Motherlove products as well. [I am not affiliated with this company at all; I only post this because I know, as a sleep-deprived new mother, it was really hard for me to get my head around taking dozens of herbal capsules a day].

 

Prescription Galactagogues

* Reglan, which is available easily through your doctor, is an option. It did boost my supply slightly. The side effects were crushing for me, though–I have never felt so jittery, restless, and exhausted all at one time in my whole life–and I discontinued it almost immediately. Some women don’t experience that, so it’s worth a shot if you want to try it. It does have the possible long-term side effect of worsening/causing depression, though, so you should avoid it if you have a history of depression.

 

* Domperidone is generally considered much lower-risk for side effects, but it is not prescribed in the U.S. [except perhaps through a compounding pharmacy?]. If you want to try this, you will have to order it online from overseas. I never tried it, because I am not comfortable with that [I know, I know–herbs are drugs too–but I’m a rule-follower]. I believe, if I understand the law correctly, it is legal to buy it for your personal use, but I am no expert, so check it out. There is information about this at Kellymom.

 

Conclusion

Breastfeeding with PCOS can go just fine, or it can be extremely difficult. If you are one of the low-milk-supply crowd, you have to make a lot of decisions at a time when you are emotionally vulnerable, postpartum. Keep the following things in mind:

* Any breast milk is better than none. Even if your baby only gets colostrum in the hospital and formula from then on out, it’s worth doing.

* There is no shame in supplementation and you should not feel guilty. Feed your baby! Nurse as much as you can, pump if you have to, give the baby what milk is available, and don’t look back.

* A lactation consultant can help you, but if you do have IGT, you may have to face the fact that exclusive breastfeeding is not going to happen. Allow yourself time to be sad about this if you need it. And then remind yourself that you’re still a good mom.

Resources

See the list under the main “Mothering” tab for general breastfeeding resources. Here are some helpful links about low milk supply and IGT.

This article on IGT, from PEDIATRICS, argues that “preserving the ‘every woman can nurse’ myth contributes to perpetuating a simplistic view of lactation and does a disservice to the small percentage of women with primary causes of unsuccessful lactation.” Amen to that.

This article, which includes information about IGT, also has some photos of hypoplastic breasts (so don’t open it at work!).